Important Ectodermal Dysplasia News & Information
Clinical Trial for Potential XLHED Treatment Seeking Volunteer Participants
The EDELIFE Clinical Trial is studying a potential treatment for boys affected by XLHED and is looking for volunteers to participate in the study. If you are a pregnant woman (over 18 years old), have a confirmed diagnosis of XLHED and are expecting a boy who also may have XLHED, you may qualify to participate.
Below are a selection of videos in multiple languages where you can hear directly from researchers and patients about this clinical trial.
Edelife Clinical Trial Video Playlist – English
Edelife Clinical Trial Video Playlist – Italian
Edelife Clinical Trial Video Playlist – French
Edelife Clinical Trial Video Playlist – German