The purpose of this website is to share information with medical professionals and the international group Leaders of the Ectodermal Dysplasia support organisations.

If you have come to this site as an individual who is affected by Ectodermal Dysplasia, please click on the world map and select the support organisation in your country where you will find the support and information you are looking for.

The Ectodermal Dysplasia International Network (EDIN) was established in 2007 and is an umbrella organisation facilitating greater collaboration between the Ectodermal Dysplasia organisation Leaders around the world working together to assimilate information.

Important Ectodermal Dysplasia News & Information

Clinical Trial for Promising XLHED Treatment Is Seeking Volunteer Participants

The ER-004 in XLHED has recieved the FDA Breakthrough designation. See the press release here