The purpose of the Ectodermal Dysplasis International Network (EDIN) website is to share information with medical professionals and the group leaders of international ectodermal dysplasia support organisations.

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Important Ectodermal Dysplasia News & Information

Clinical Trial for Potential XLHED Treatment Seeking Volunteer Participants

The EDELIFE Clinical Trial is studying a potential treatment for boys affected by XLHED and is looking for volunteers to participate in the study. If you are a pregnant woman (over 18 years old), have a confirmed diagnosis of XLHED and are expecting a boy who also may have XLHED, you may qualify to participate. Learn More.

More EDELIFE News:

The ER-004 in XLHED has recieved the FDA Breakthrough designation. See the press release here