Important Ectodermal Dysplasia News & Information

Clinical Trial for Potential XLHED Treatment Seeking Volunteer Participants

advert for prenatal study for xlhed on a white background with blue and orange headings

The EDELIFE Clinical Trial is studying a potential treatment for boys affected by XLHED and is looking for volunteers to participate in the study. If you are a pregnant woman (over 18 years old), have a confirmed diagnosis of XLHED and are expecting a boy who also may have XLHED, you may qualify to participate. Learn More.