The purpose of the Ectodermal Dysplasis International Network (EDIN) website is to share information with medical professionals and the group leaders of international ectodermal dysplasia support organisations.
Important Ectodermal Dysplasia News & Information
The EDELIFE Clinical Trial is studying a potential treatment for boys affected by XLHED and is looking for volunteers to participate in the study. If you are a pregnant woman (over 18 years old), have a confirmed diagnosis of XLHED and are expecting a boy who also may have XLHED, you may qualify to participate. Learn More.
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