Physicians

The Ectodermal Dysplasia International Network (EDIN) organisations each have their own Medical Advisory Boards, together with extensive lists of medical professionals who have knowledge and understanding of the Ectodermal Dysplasias.

Some of these professionals are listed below, but should you wish to have contact with these or any other professionals known to the EDIN organisations, please email or call the Ectodermal Dysplasia organisation in your country who will be pleased to help you all they can and put you in touch.

United Kingdom

Professor Angus J. Clarke, DM, FRCP, FRCPCH
Professor and Honorary Consultant in Clinical Genetics

Mr. Colin E. Willoughby, BSc. (Hons), MBChB (Hons), MD FRCOphth
Ophthalmic Surgeon, Senior Lecturer, Consultant Ophthalmologist

Sweden

Chief dentist, PhD: Johanna Norderyd
National Oral Disability Centre

Senior Consultant, specialist in prosthetic dentistry: Pernilla Holmberg
National Oral Disability Centre

Karin Högkil, chief dentist & coordinator of ED-team (multidisciplinary)
EastmaninstitutetPedodonti

Sandra Götberg, pediatrician
Astrid Lindgrens Barnsjukhus, Jakobsberg BUMM

Marianne Lillehagen, Clinic Director, Specialist Dentist in pediatric dentistry
Mun-H Center, Gothenburg

Veronica Wingstedt de Flon, Manager
Swedish National Center for Rare Diseases, NFSD, Umbrella organization

Denmark

Ms. Jette Daugard
Odontology Knowledge Centre, Department Of Oral and Maxilliofacial Surgery

Germany

PD Dr. med. dent. Katharina Bücher
Spezialistin Kinderzahnheilkunde

Prof. Dr. Dr. Siegmar Reinert
UNIVERSITÄTSKLINIKUM  TÜBINGEN

Dr. med. dent. Marcel Hanisch
Fachzahnarzt für Oralchirurgie, Master of Business Administration in Medical Management (MBA)

Prof. Dr. med. Holm Schneider
Facharzt für Kinder- und Jugendmedizin

Italy

dott. Tadini CMCE
Dermatologia Pediatrica – Dipartimento di Medicina Interna e Specializzazioni Mediche