The Ectodermal Dysplasia International Network (EDIN) organisations each have their own Medical Advisory Boards, together with extensive lists of medical professionals who have knowledge and understanding of the Ectodermal Dysplasias.
Some of these professionals are listed below, but should you wish to have contact with these or any other professionals known to the EDIN organisations, please email or call the Ectodermal Dysplasia organisation in your country who will be pleased to help you all they can and put you in touch.
Professor Angus J. Clarke, DM, FRCP, FRCPCH
Professor and Honorary Consultant in Clinical Genetics
Mr. Colin E. Willoughby, BSc. (Hons), MBChB (Hons), MD FRCOphth
Ophthalmic Surgeon, Senior Lecturer, Consultant Ophthalmologist