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Welcome to the Ectodermal Dysplasia International Network.

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If you are an individual who is affected by ectodermal dysplasia, please click on the world map below and select your country to connect with the support organisation near you.

POTENTIAL XLHED TREATMENT

The EDELIFE clinical trial is studying a potential prenatal treatment for XLHED affected boys. Trial sites are now open in the below countries. Click on your country to learn more.

France
Germany
Italy
Spain
United Kingdom
United States

International Conference for Ectodermal Dysplasias

SAVE THE DATE: ICED25

International Conference for Ectodermal Dysplasias

10-12 June, 2025

Location: Birmingham, England

Venue: Austin Court

Contact Us

Find contact information here.

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