The Ectodermal Dysplasia International Network (EDIN) website is a hub for the international group leaders to share information, medical articles and to encourage development and support within individual countries.
EDIN was established in 2007 and is an umbrella organisation facilitating greater collaboration between ectodermal dysplasia organisation leaders around the world working together to assimilate information.
We welcome medical professionals and authorities to our website and ask that you use the map on the home page which provides links direct to each international organisation. If you have a medical article or information you would like to share with all the Ectodermal Dysplasia international support organisations, please contact either Diana or Ulrike whose contact details are below.
Executive Committee
Mette Anthonsen, Chair, Sweden
Thomas Counioux, Secretary General & Vice Treasurer, France
Diana Perry, Treasurer, UK
Ulrike Holzer, Vice Chair, German-speaking countries
Greg Klimovitz, Vice Secretary General, USA
Beth Ferlazzo, Administration Officer, Australia
Lars Utzon, Ex-Com Member, Denmark
Manuel Chicano, Ex-Com Member, Spain
Contact
68 B Rue Jouffroy D Abbans
75017
Paris 17
France
Thomas Counioux, Secretary General
thomas@edinetwork.org
Tel: +33 (0) 638 337 906