The Ectodermal Dysplasia International Network (EDIN) website is a hub for the international group leaders to share information, medical articles and to encourage development and support within individual countries.

EDIN was established in 2007 and is an umbrella organisation facilitating greater collaboration between ectodermal dysplasia organisation leaders around the world working together to assimilate information.

We welcome medical professionals and authorities to our website and ask that you use the map on the home page which provides links direct to each international organisation. If you have a medical article or information you would like to share with all the Ectodermal Dysplasia international support organisations, please contact either Diana or Ulrike whose contact details are below.


Ulrike Holzer, Chair, Germany & Austria

Mary Fete, Vice Chair, USA

 Mette Anthonsen, Vice Treasurer, Sweden

 José Manuel Montoya Gutierrez, Vice Secretary General, Spain

 Diana, Treasurer, UK

 Thomas Counioux, Secretary General


68 B Rue Jouffroy D Abbans
Paris 17
Tel: +33 (0) 638337906
Tel: +44 (0) 7774 465712