There is much research being carried out internationally in respect of the Ectodermal Dysplasias.

Many families, who have experience of the Ectodermal Dysplasias and who are known to medical professionals and the international Ectodermal Dysplasia organisations, would be willing to participate in research projects, no matter where the research is being conducted.

As the Ectodermal Dysplasia organisations work in close collaboration, we are able to be kept up to date with both current and future research projects.

List of current research projects

Clinical Trial for Promising XLHED Treatment Is Seeking Volunteer Participants

XLHED – Treatment/research

Advancing treatments for rare diseases together

The ER-004 in XLHED has recieved the FDA Breakthrough designation. See the press release here – July 2020