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International Groups

Argentina – ADEA Asociacion Displasia Ectodermica Argentina 
Australia – Australian Ectodermal Dysplasia Support Group (ozED)
Belarus – (e-mail link)
Canada – Canadian Ectodermal Dysplasia Syndromes Association (CEDSA)
China -(e-mail link)
Denmark – Ectodermal Dysplasia Dk
Egypt – (e-mail link)
France – Association Francaise Dysplasies Ectodermiques (AFDE)
Germany/Austria/Switzerland – Selbsthilfegruppe Ektodermale Dysplasie e.V.
Hungary – (e-mail link)
Ireland – Ectodermal Dysplasia Society (e-mail link)
India – (e-mail link)
Italy – Associazione Nazionale Displasia Ectodermica (ANDE)
Mexico – Asociacion Mexicana de Displasia Ectodermica Mariana, A.C(AMDEM)
Netherlands/Belgium/Luxemburg -Ectodermal Dysplasia the Netherlands
Norway – Norsk ED forening (e-mail link)
Pakistan –  (e-mail link)
Poland – Jestesmy
Russia – Ectodermal Dysplasia Russia
Singapore – (e-mail link)
South Africa – (e-mail link)
Spain – Asociacion de Afectados por Displasia Ectodermica (AADE)
Sweden – Svenska Ed-föreningen
Turkey – Ectodermal Dysplasia Group Turkey
USA – National Foundation for Ectodermal Dysplasias (NFED)
EEC international Group
Incontentia Pigmenti

July 18, 2019
Sue Beard

Translate

If you are an individual who is affected by ectodermal dysplasia, please click on the world map below and select your country to connect with the support organisation near you.

 

POTENTIAL XLHED TREATMENT

The EDELIFE clinical trial is studying a potential prenatal treatment for XLHED affected boys. Trial sites are now open in the below countries. Click on your country to learn more.

  • France
  • Germany
  • Italy
  • Spain
  • United Kingdom
  • United States

International Conference for Ectodermal Dysplasias

SAVE THE DATE: ICED25

International Conference for Ectodermal Dysplasias

10-12 June, 2025

Location: Birmingham, England

Venue: Austin Court

Contact Us

Find contact information here.

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