Skip to content
EDI Network

Welcome to the Ectodermal Dysplasia International Network.

Facebook Email Search
  • Home
  • Research
  • About
    • Introduction
    • Types
    • Symptoms
    • Genetics
  • Articles
  • Physicians
  • Useful Links

Useful Links

Click on the relevant logo below and you will be taken to their website

Incontinentia Pigmenti International Foundation

EEC Syndrome International Group

Genetic Disorders UK

Orphanet

RareConnect

Rare Diseases UK

EspeRare

Eurordis

April 10, 2019
Sue Beard

Translate

If you are an individual who is affected by ectodermal dysplasia, please click on the world map below and select your country to connect with the support organisation near you.

 

POTENTIAL XLHED TREATMENT

The EDELIFE clinical trial is studying a potential prenatal treatment for XLHED affected boys. Trial sites are now open in the below countries. Click on your country to learn more.

  • France
  • Germany
  • Italy
  • Spain
  • United Kingdom
  • United States

International Conference for Ectodermal Dysplasias

SAVE THE DATE: ICED25

International Conference for Ectodermal Dysplasias

10-12 June, 2025

Location: Birmingham, England

Venue: Austin Court

Contact Us

Find contact information here.

© 2023 EDI Network